From now on my posts will be as follow (Day -7 which means seven days til transplant and then once its transplant day it will day Day 0 then from there it will be Day +1 as so forth)
We had to be at the hospital for 3 yesterday, it was about a quarter til and I was about 10 minutes away. I was going through the Wedny's drivethru and a man approached my car. I, of course, was a little chicken and barely rolled my window down, but he just wanted to tell me that I had a flat. WOW a flat...whata day I thought. He then told me that right next door they could fix it. Luckily my dad was behind me and luckily my tire didn't blow out on the interstate. Last night I was thinking about the eventful evening and I got the best feeling. I know that God was telling me to just let go and let him have control because HE'S GOT THIS! He knew I needed to hear that!!
We got in Coles sterile transplant room last night around 10 pm and sort of got settled in. I became very overwhelmed with his night nurse telling me everything I have to do daily. Last night I stayed up till well after midnight just thinking and going through my daily schedule and again I felt like I was having a panic attack. Right then and there I closed my eyes and I asked God for a wonderful nights rest for Cole & I and to wake up with a new outlook on everything. Needless to say, my Lord and Savior came through as always...we woke up this morning at 9am with big smiles on our faces and ready to tackle the day. I've done everything that needs to be done so far and haven't looked back...God is good isn't he!?
Cole has received his chemo for the day and is acting like his normal self still. I can only pray that this is an indication of what's to come! I thank God daily for making me strong enough to be Cole's mommy & for making him such a trooper to withstand anything that is laid in his path!!!
I'm debating switching over to caring bridge for my blog type thing instead of using this. I'm going to check it our and will definitely let each of you know what I decide to do!
Cole is getting tired (probably from the benedryl and zofran that he was pre medicated with) so I'm going to put him down for a nap. I hope everyone has a wonderful Monday and a safe and beautiful week!
Until next time!
_Cole's Mommy
Monday, April 30, 2012
Friday, April 27, 2012
April 27, 2012
To think within 48 hours, Cole will be admitted to Children's Hospital for what is to be one of the most important days in his life!
I'm terrified to say the least...I think I've been so here and there lately that I haven't (until yesterday) realized that this is going to be tough...extremely tough.
I keep praying to God to give me some type of sign to show me that Cole will be ok. It's so crazy because when I do (most of the time Cole is sleeping) & I happen to look over at him & he gives me the biggest grin in the midst of his snores. I don't know if that's God's sign for me, but I seem to think it is :)
By this time next week, Cole will have had some very potent Chemo medicines and will be on the verge of getting his BMT...how surreal because as scared as I am, it has seemed like this day/week/month would never come.
I ask each & every one of you to please remember Cole in each of your prayers within the next month or so. Thank you.
On a better note, Cole has started saying Mama :) It's his first real word besides Ugh oh & I am one VERY happy Mama!!! He's also become such a little dancer...he loves music so I have a feeling that'll be his fun times in the hospital...or at least I hope!
There's so much to get done before Sunday and I think my sweet husband wants to take me out to eat tonight...hope ya'll have a great weekend & until next time!!
-Cole's Mommy
I'm terrified to say the least...I think I've been so here and there lately that I haven't (until yesterday) realized that this is going to be tough...extremely tough.
I keep praying to God to give me some type of sign to show me that Cole will be ok. It's so crazy because when I do (most of the time Cole is sleeping) & I happen to look over at him & he gives me the biggest grin in the midst of his snores. I don't know if that's God's sign for me, but I seem to think it is :)
By this time next week, Cole will have had some very potent Chemo medicines and will be on the verge of getting his BMT...how surreal because as scared as I am, it has seemed like this day/week/month would never come.
I ask each & every one of you to please remember Cole in each of your prayers within the next month or so. Thank you.
On a better note, Cole has started saying Mama :) It's his first real word besides Ugh oh & I am one VERY happy Mama!!! He's also become such a little dancer...he loves music so I have a feeling that'll be his fun times in the hospital...or at least I hope!
There's so much to get done before Sunday and I think my sweet husband wants to take me out to eat tonight...hope ya'll have a great weekend & until next time!!
-Cole's Mommy
Wednesday, April 18, 2012
April 18, 2012
It's been so long, but here goes for what's been going on lately. Cole has been in the hospital since April 15th for his Campath. He's actually doing well with it because the only side effect he's had is fever. The nurse said how shocked she is of how well he's doing.....what a confidence boost!!! God is good! Campath goes over 6 hours per day with vitals every 15 minutes...ughhh what a headache!
Dr Velez just came in and said Coles levels are dropping accordingly and tomorrow it's looking like hell have his transfusion of blood and platelets...then by the way things are going well be discharged first thing Friday morning....yayyy I'm so ready to get in my bed and see my hubby!!!!
I can't even begin to thank God enough for making Cole as strong as he is!! Without God we are nothing....he is truly amazing!!! I can only hope, pray and trust in the Lord to continue to strengthen Cole for the weeks, months and years to come!!
God is our strength!!
-Coles Mommy
Dr Velez just came in and said Coles levels are dropping accordingly and tomorrow it's looking like hell have his transfusion of blood and platelets...then by the way things are going well be discharged first thing Friday morning....yayyy I'm so ready to get in my bed and see my hubby!!!!
I can't even begin to thank God enough for making Cole as strong as he is!! Without God we are nothing....he is truly amazing!!! I can only hope, pray and trust in the Lord to continue to strengthen Cole for the weeks, months and years to come!!
God is our strength!!
-Coles Mommy
Sunday, April 8, 2012
Easter Sunday!
HAPPY EASTER EVERYONE!!!
Sorry it's been awhile we've had such a busy weekend with Coles 1st birthday this past Friday!!! He had a yummy Paul's Pastry cake and Kk, Ana, Flop, Morgan, Granny, Papa and Nana came to visit him!:).
They've continued to run various tests on Cole and it's negative for UTI so they think the 1st test was contaminated. He's finally starting to test negative for his other infections as well! Go Cole!!!!!!!!
Dr. Yu is sending Cole home tomorrow for a week before he comes back for Campath. Hell have a weeks worth of antibiotics taken by mouth at home just to make sure everything is taken care of.
These past few weeks have been extremely overwhelming, but I can tell you that Jesus has stayed by our side this entire time!! I know that I've had my worries lately,but I take a second and close my eyes and if all I ask for is help then that's what Jesus does!!
I hope everyone has an amazing Easter and remembers the real reason for Easter! Love y'all!!
-Coles Mommy
Sorry it's been awhile we've had such a busy weekend with Coles 1st birthday this past Friday!!! He had a yummy Paul's Pastry cake and Kk, Ana, Flop, Morgan, Granny, Papa and Nana came to visit him!:).
They've continued to run various tests on Cole and it's negative for UTI so they think the 1st test was contaminated. He's finally starting to test negative for his other infections as well! Go Cole!!!!!!!!
Dr. Yu is sending Cole home tomorrow for a week before he comes back for Campath. Hell have a weeks worth of antibiotics taken by mouth at home just to make sure everything is taken care of.
These past few weeks have been extremely overwhelming, but I can tell you that Jesus has stayed by our side this entire time!! I know that I've had my worries lately,but I take a second and close my eyes and if all I ask for is help then that's what Jesus does!!
I hope everyone has an amazing Easter and remembers the real reason for Easter! Love y'all!!
-Coles Mommy
Monday, April 2, 2012
April 2, 2012
I don't even know where to start!!!....
Well as many of you know Cole came into the hospital for spiking fever. Then after a day or so he was diagnosed with a bacterial infection in his blood from his new line. After a few more days, they then diagnosed him with c diff which hurts his tummy really bad :(. Well after a few days they said that his WBC (white blood count) was elevated and they thought he might be having problems with his clotting factors of his blood. They elected to give him FFP (fresh frozen plasma) last night to see if thatd help with his line issue and with his WBC. Today his line is finally working (praise Jesus). Cole, in the meantime,is on 2 antibiotics, an anti fungal and around the clock fluids. This afternoon, while changing his diaper, I noticed these (excuse my descrition) pimple looking dots on his booty. I brought it to the drs attention during rounds & he said we have to keep a very close eye on it because they could become infection, but that it looked like bacterial on the skin. Oh really doc, well you'd THINK the 2 antibiotics and the anti fungal AND his 6 meds he gets am and 6 pm that something might help!?!?!? Arghhh !! Well needless to say they've decided to do 14 days antibiotics for the bacterial infection which leads him into the weekend as opposed to early this week. We have no clue about his Campath or transplant so I suppose that we will just have to see what his week brings.
It's raining outside and I seem to feel like God is depicting my mood through the weather. I sit here and see this beautiful face crawling all over the room...smiling and yelling at me and I can't help but want a break (even if it's a day) but a break for him to go outside and enjoy this beautiful weather we've been having. I don't see that happening so I guess well make the best of it...what else is there to do!? We're confined to a 10x10 white room because of Coles c diff being contagious...whoopie :/.
I don't mean to sound ungrateful, I even tell God that I can't thank him enough for giving Cole to me, but I'm so frustrated. I want my family back as a whole...is that too much to ask?! I want to be able to see my husband everyday and for him and Cole to play...I'd love for Cole to have his first swim in the pool but noooooo stupid hlh had to rear its ugly head and cole has a line in his chest and can't get wet!!! Ok enough gripping, I'm making myself angry And sad talking about it. Time to go spend quality time with my man.
-Coles Mommy
Well as many of you know Cole came into the hospital for spiking fever. Then after a day or so he was diagnosed with a bacterial infection in his blood from his new line. After a few more days, they then diagnosed him with c diff which hurts his tummy really bad :(. Well after a few days they said that his WBC (white blood count) was elevated and they thought he might be having problems with his clotting factors of his blood. They elected to give him FFP (fresh frozen plasma) last night to see if thatd help with his line issue and with his WBC. Today his line is finally working (praise Jesus). Cole, in the meantime,is on 2 antibiotics, an anti fungal and around the clock fluids. This afternoon, while changing his diaper, I noticed these (excuse my descrition) pimple looking dots on his booty. I brought it to the drs attention during rounds & he said we have to keep a very close eye on it because they could become infection, but that it looked like bacterial on the skin. Oh really doc, well you'd THINK the 2 antibiotics and the anti fungal AND his 6 meds he gets am and 6 pm that something might help!?!?!? Arghhh !! Well needless to say they've decided to do 14 days antibiotics for the bacterial infection which leads him into the weekend as opposed to early this week. We have no clue about his Campath or transplant so I suppose that we will just have to see what his week brings.
It's raining outside and I seem to feel like God is depicting my mood through the weather. I sit here and see this beautiful face crawling all over the room...smiling and yelling at me and I can't help but want a break (even if it's a day) but a break for him to go outside and enjoy this beautiful weather we've been having. I don't see that happening so I guess well make the best of it...what else is there to do!? We're confined to a 10x10 white room because of Coles c diff being contagious...whoopie :/.
I don't mean to sound ungrateful, I even tell God that I can't thank him enough for giving Cole to me, but I'm so frustrated. I want my family back as a whole...is that too much to ask?! I want to be able to see my husband everyday and for him and Cole to play...I'd love for Cole to have his first swim in the pool but noooooo stupid hlh had to rear its ugly head and cole has a line in his chest and can't get wet!!! Ok enough gripping, I'm making myself angry And sad talking about it. Time to go spend quality time with my man.
-Coles Mommy
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