Where to even start...this week has been a hectic one so I can only imagine what next week will be like having apt. after apt. day after day!
Monday, 2/20, Cole had his regular chemo apt. The dr. looked at his ears to check the progression of the ear infection he has had in the previous weeks and it was gone!!! AMEN! He got is round of VP16 and did so good this week...no throwing up!!
Mardi Gras holiday came & went...we stayed at home because crowds make me so nervous with him, but I promised him that next year if he is feeling well that we'd go (if though he didn't understand a word I said, lol.)
Wednesaday, 2/22, he had his first part of his transplant workup. We had to be at the hospital for 8am...so that meant getting up for 6 & as most of you know I'm NOT a morning person and slowly but surely Cole is taking after his Mama! When we got to the hospital the clinic was empty so we got some one on one time with the nurses and they casually talked to us about the transplant and the hospital stay. At 830 we went for his dental exam & let me just say that Cole is NOT a fan of the dentist! He only has 2 bottom teeth, but it's required to get a dental exam so it was short, sweet and to the point! Cole now uses a big boy toothbrush and he's steadily getting ok with doing it in the morning and at night. After his dental apt. we met with the Transplant Coordinator, Lisa. She was so unbelievably sweet!! She gave me some literature to read & I've gotten through a few chapters of Bone Marrow and Blood Stem Cell Transplants: A Guide for Patients & I recommend it for all the parents of transplant patients. It breaks down the entire process from A-Z. She also prepared us for the meeting next Wedneday with Dr. Yu (the transplant dr) and said if we have any questions to write them down so we won't forget to ask them...ohhh I have manyyy!!
I just keep replaying in my mind the full weeks we have to come with apt. apt. apt. & procedure procedure procedure & man I'm mentally worn out. I can only imagine how tired my bug will be after all of this! I'm trying to keep busy so I won't sit and think about EVERYTHING and over analyze (which I'm terrible about doing). I don't my mother-in-law yesterday that I mentally knew all of this was going to happen, but to have these dates down in the books was just like a gut shot and now I'm being a worry wart. I've continuously prayed asking God to give me comfort and strength. I know everything happens in his time so I can't wait to finally have this AHA feeling that Cole will be completely fine! I just have this mental picture of a weak pale baby laying in the hospital bed just looking over at me like he just wants it to be over & that breaks my heart. I'd take this from him in a heart beat if I could. I'd take EVERTHING from him...the chemo, the procedures all the way down to the hospital stays!
I throughly believe that Cole was meant to be my child for a reason. Before all of this happened I had an OK relationship with God, but now WOW...God shows me new, powerful things everyday through Cole and I can't thank him enough. Last night, when I was praying, I literally got giddy thanking God for placing Cole in my life as my son. I just couldn't express to him enough how blessed I am. From the waking up in the morning to slobbery kisses to going to bed at night with a bed hog it is such a blessing to be his Mommy.
-Cole's Mommy
You don't raise heroes, you raise sons. And if you treat them like sons, they'll turn out to be heroes, even if it's just in your own eyes. ~Walter M. Schirra, Sr.
No comments:
Post a Comment